Child Deaths & Bereavement Support

The death of any child is a tragedy. Since April 2004 local children safeguarding boards are required by the government to review the death of a child (0-18 years) in order to support families and also to see if there is anything we or anyone else can do to improve services offered for children and their families in the future (Working together 2015). It is vital that all child deaths are carefully reviewed so that we may learn as much as possible, to try to prevent future deaths and to support families.

Parents are invited to contact Noreen Gurner, Specialist Nurse for Child Death Reviews if they wish for advice and support and to contribute towards the review of their child’s death. Contact details as follows:

Email at noreen.gurner@nhs.net or telephone on 07824 350491

For more information on the child death review process please see the information detailed under our Professional’s web pages

Bereavement Support Organisations for parents, carers, children and young people

Other Support Resources

Lullaby Trust 

When a baby dies suddenly and unexpectedly 

The Child Death Review – A guide for Parents and Carers (PDF)

Oasis Study

A Study that is being undertaken into the possible relationship between the Newborn Hearing Screening Test and the risk of unexpected infant deaths.

The Oasis study is being funded by The Lullaby Trust and is being led by Professor Peter Fleming, Professor of Infant Health and Developmental Physiology, Consultant Paediatrician, University of Bristol whose career has been dedicated to reducing unexpected deaths in infants and children.

Background

A study conducted in the USA in 2007 showed differences in the Newborn hearing test results of babies who subsequently died as SIDS compared to babies who survived. These results need to be confirmed with UK data but one possibility is that these differences are signalling an injury to the brainstem which may lead to abnormalities of the control of breathing, temperature control or blood pressure. If the US study is correct, it may be possible to identify a proportion of the infants or young children at high risk of unexpected death, offering the possibility of advice and monitoring that may prevent some of these deaths.

The study has now commenced and The Lullaby Trust would like to speak confidentially to any family whose baby or young child died suddenly and unexpectedly after 1st January 2010 and who might be interested in contributing to this research. Please call Catherine Taylor at The Lullaby Trust on Tel: 020 7802 3219 if you would like to be part of this important research and she will be able to give you more information and answer some of your questions.

The Specialist Nurse for Child Death Reviews in Surrey will be writing to families in Surrey known to have lost a child as a result of SIDS to inform them of the research and inviting them to participate in the study should they wish to do so.

Further information is available at: http://www.lullabytrust.org.uk/file/1Newborn-Hearing-Testing-and-the-Risk-of-Unexpected.pdf